Millie's Story

On the 30th December 2018, Emilia (Millie) was diagnosed with T-Cell Lymphoblastic Lymphoma. Millie presented to Lismore Base hospital with left sided shoulder pain and chest pain. X-rays discovered her whole left lung was whited-out, and required transfer to the Gold Coast University Hospital for insertion of a chest drain to remove the fluid in her lung. Following the removal of the fluid, subsequent chest X-rays revealed a large mass, in behind her heart. Millie was then transferred to Queensland Children’s Hospital Paediatric Intensive Care Unit, in Brisbane, under Dr Chris Fraser and the amazing oncology team.

Millie commenced chemotherapy on the 30th December, 2018. At first her tumour didn’t respond to the chemotherapy, but changes to the chemotherapy drugs would see the tumour shrink. After developing an infected lung node during treatment, Millie relapsed and required intensive chemotherapy to try and rid her body of the tumour. The intensive chemotherapy was successful and Millie underwent a Bone Marrow Transplant on the 26th June, 2019. Millie’s donor was her sister Olivia. Millie has remained cancer free and is living her best life.

Unfortunately, in May 2025 a tumour was found in Millie’s brain, and she has been diagnosed with High Grade Glioma. There is no cure for High Grade Glioma. Treatment may extend her life. 

 

Millie is now 14 and we want to help her do as many fun things as she can. She is working on a bucket list.